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Hemochromatosis

01-22-2010, 09:34 AM

JanSz

01-22-2010, 12:50 PM

Lets return to this question from time to time.

I would be interested at least in E2 home testing.

Yesterday, being with my grandson at doc's office, I have learned that there is quick hemoglobin test (kind of a strip).

Within 2-5 minutes we had Hg results.

This test may be useful for guys who need to time their phlebotomies.

I have also learned about children range for Hg, it is not posted in Quest tests description or their Endo-Manual.

The normal ranges for hemoglobin depend on the age and, beginning in adolescence, the sex of the person. The normal ranges are:
http://www.medterms.com/script/main/art.asp?articlekey=15737
Newborns: 17-22 gm/dl
One (1) week of age: 15-20 gm/dl
One (1) month of age: 11-15gm/dl
Children: 11-13 gm/dl
Adult males: 14-18 gm/dl
Adult women: 12-16 gm/dl
Men after middle age: 12.4-14.9 gm/dl
Women after middle age: 11.7-13.8 gm/dl

================================================== ===

Doctor was using this range for my 3y5mo grandson.

Children: 11-13 gm/dl

He came with 11.3
doc declared him ok (I say bs (quietly under my nose).

For me, this is small victory,
together with my previous nagging, hopefully he will eat less

donuts, candies, pasta, pizza, french fries, sodas (caffeine) (sugar + caffeine)

and more

beef patties, liver, eggs and so on.

................
================================================== ======

But look (and weep), what big pharma have in store for

Men after middle age: 12.4-14.9 gm/dl

With blood like that they will declare everything is "normal"

We really have to be careful, doctors smile, (and do not help).

Wonder what he would say to me (70yo), I have Hg=16

...........

Hemochromatosis

01-22-2010, 12:59 PM

JanSz

01-22-2010, 06:43 PM

Convention is overrated and in my mind is nothing more than the gathering of the apathetic and bureaucratic. If we relied on Quest "AGE ADJUSTED' ranges we would be bad off. A 242 T would be in range.

HG testing with the prick and pipettes have been out for a while and those machines are relatively inexpensive. Hematacrit and Hemoglobin are alright, but I usually try to get a Ferritin (Fe) level when I am phlebbing. Packed red blood and O2 saturation is fine but the level of transport protein has other indicator values such as potential iron stores in addition to serum levels.

You have been forced learn a lot on this topic.

Please share your approach on how to keep your blood in proper level.
What to measure
what are the ranges, how to read them and plan for next blood draw.

Say that at this moment you have someone with this info:

Hemoglobin(Hg)=18.2 (12.5-17)
Hematocrit(Hct)=52.9 (36.0-50.0)

No Ferritin value available.

I would say get plebotomy and aim at Hg=16

But I do not know much more details.
How much blood to take?
how often

Details, details

Please help with planning around this subject.

It gets off your original question, it is your thread, either pls answer here or start new thread.
...

MarkLA

01-22-2010, 08:19 PM

Jan,

When your blood is that thick, you are at increased risk of stroke.

Mine was up near the values posted and I have been doing therapeutic phlebotomies to keep it lower. I can still run, lift weights and have plenty of energy with lower hemoglobin. I actually feel more relaxed with it lower. I notice that right away.

I try to go in there at 15.5-16ish, the double-red procedure drops me an estimated 2 points so 13.5-14ish after. I feel better and no stroke risk.

Mark

MarkLA

01-22-2010, 08:22 PM

have learned that there is quick hemoglobin test (kind of a strip).

Do you have details?

Hemochromatosis

01-22-2010, 08:30 PM

You have been forced learn a lot on this topic.

Please share your approach on how to keep your blood in proper level.
What to measure
what are the ranges, how to read them and plan for next blood draw.

Say that at this moment you have someone with this info:

Hemoglobin(Hg)=18.2 (12.5-17)
Hematocrit(Hct)=52.9 (36.0-50.0)

No Ferritin value available.

I would say get plebotomy and aim at Hg=16

But I do not know much more details.
How much blood to take?
how often

Details, details

Please help with planning around this subject.

It gets off your original question, it is your thread, either pls answer here or start new thread.
...

JanSz: While I appreciate your inquiry 1) I am not a doctor, 2) will not take on the potential liability of shooting from the hip and 3) would need more information on the individual.

I have no problem experimenting on me or using myself as an example if it helps others. Yes, I have logged 35,000 pages of reading and have talked to most every electrophysiologist and published cardiologist on atril fibrillation. I am convinced that my AF is caused by the hemochromatosis and hormonal offsets. In Jan 2005 no pattern at all. Phlebbed tons and started TRT and ADrenal Replenish and I swear I have times of 2 minutes + of normal sinus rhythm. Definitely something there.........

RE my approach to iron management: I stay clear of spinach and anything enriched or fortified because the FDA enrichment and fortification programs are designed to kill us as part of a slow genocide.

Dr. Levi is a cardiologist from KC. I checked him out and his credentials are valid.

http://www.youtube.com/watch?v=5ahlawrQHeA

Dr. J needs to consider how this non bioavailable iron is impacting beta cells, creating insulin resistance and type II outbreaks in record numbers. Remember we were not so obese as little as 15-20 years ago........

I have to say I consider myself fortunate to have hemochromatosis. My genetic disposition has made me have to contend with iron loading and iron quality issues. My anthem will pass most in here by and they will not think twice about it until one day......unfortunately that one day represents an event in the form of a stroke or liver cancer.........remember iron is not only the nuclei of every red blood cell but is the food of cancer........

So by having it present and surviving a stroke I had to set my life to mitigating, understanding and living with it. I had a great hematologist in Dr. Mumanini in SoCal. She was from India and she was so receptive. Hemochromatosis was on mystery diagnosis. Triathelete had twice my load and was bronze and crippled in a few months......

I phlebed 35 pints in a year, every other day for the first few weeks then weekly then it accelerated to more elongated durations to once a month and I have pushed it out to over a year now but got hammered when i recently experimented on a hypothesis that TRT affected hepcidin the iron master control hormone.

I drove myself into anemia as the objective at an Fe of 12. Backed it off and maintain a target of 15 to 20.

Then I mobilized the stored iron with 250mg of vitamin c for a month and kept a semi frequent pleb cycle. That was the problem I dont i use to get pseudo gout (CPPD- calcium pyrophosate dihydroxide disease manifestations) 3 times a year at first crippling like regular gout for a few days . Well the frequency increased to every two months and bed ridden for as long as 7-10 days.

Sidenote: I have a theory that the calcium phyrophosphate has some contributing factor to my atril fibrillation since calcium channels and uptake in the heart is an AF factor.

I arrested the psuedo gout for over a year and was please to know I was able to push the event threashold out and wanted to know how long I could hold out under extreme circumstances. However, when it hit this time, no more putting off phlebs i was out of my mind with pain ever freaking joint was tearing at me like a drill was going through them......i separated my shoulder, rolled my bicep to my shoulder but the pain of psuedo gout will challenge your mind.....

I dont know if the T cascaded and augmented the hepcidin or if I got buy time from unloaded the tissue store from iron with the Vit C as a chelator, not sure and it sucks because I took a hit to try to see if my hypothesis on T influence over hepcidin was valid. I wish fooking UCLA who found hepcidin would do a follow on clinical....

So I stay phlebed, stay away from high iron concentrates and I actually take a colloidal mineral supplement that has trace iron. I get a great mineral flow through and I just phleb to deal with the iron. I wish the genetic lab in NC founded by murdock would reprogram my HFE gene. anyway....

the shit iron from the above youtube, clogs the outter ring of the red bloodcell with the other total dissolved solids at best the nuclei gets a partial leeching affect from the non bioavailable iron.

However, when one phlebs, then chelates, and then loads with proper iron the red blood cells will start to resonate not completely properly because of the lack of the other 6 sugars most of us have no clue about but the nuclei gets definitely more satisfied.

I take IP6 with is for cellular repair and an ongoing very light chelator. Vit C can be very dangerous believe it our not when using it to move iron stores keeping in mind iron binds with copper and has its highest absorption in the colon/intestines.

I use reference to hematacrit or hemoglobin Hct=Hg/3 when I do not have a current Fe. Fe is where it is at. Also I need to go back and find the clinical , may have been out of UK, they are finding the oxidizing affects of iron on LDL stores has some major contribution to cancer formation.

It is the very element artemisinin targets to choke off a cancer cell. I had a 70 y/o female friends sister get breast cancer. I suggested artemisinin and some other ideas that she deployed and she was also assisted by some female homeopath out of socal, cancer free in 4 weeks not a trace, recurring testing and even two different clinics over 9 months period over and over - no trace. get this: she gets killed with her friend in a car accident in socal by a drunk driver.......FATE

anyway, lots on the subject that is a partial chunk....

there was a clinical by .....case western on the affects of artemisinin on cancer and how it basically masks the ferriten receptor and inhibit iron utilization like a trojan horse to kick ass on the cancer. guy had an off the chart psa at like 15+ that reduced to under 1 within weeks. E2 is also a btich on prostate issues....dif subj....

The key here is to understand iron in proper form in a cleared body is our friend even with hemochromatosis, but what we are being fed is complete and utter bullshit and frankly the FDA administrators of the program have alot of explaining to do. The iron used in enrichment and fortification is a huge cost savings to the food giants.

I wish Dr. J would embrace hemochromatosis testing, iron testing in general and understand that his efforts in some cases, especially where beta cells are an issue an insulin absorption are on the table are drastically being affected by this Iron and the related expressions.

volume is usually a pint.........some people go less, never more......if you have an arrhythmia best to step it up from 250cc's by 100cc increments to 500 max.

great for the roses minus the coumadin....iron enriched blood rocks the roses

if you havent had enough read my posts on this thread and enjoy.....

http://www.musclechatroom.com/forum/showthread.php?t=2283

today is a good day to be alive........we all walk on rice paper. forge a good memory and hold it tight as the sum of all experiences it embedded your resonance and is the only thing that may go with us if we maintain an energy formation and not dissipate.......

JanSz

01-23-2010, 11:00 AM

JanSz:
there was a clinical by .....case western on the affects of artemisinin on cancer and how it basically masks the ferriten receptor and inhibit iron utilization like a trojan horse to kick ass on the cancer. guy had an off the chart psa at like 15+ that reduced to under 1 within weeks. E2 is also a btich on prostate issues....dif subj.....

Thank you very much, Hemochromatosis.

Lots of useful information.

There is no one around who knows more on this subject.
Hopefully you will find a time to chime in when people with high Hct show up asking questions. There is few around here, possibly with less challenging cases than you are facing.

=================
=================
From your complete post I have cut out portion on

artemisinin on cancer
---

I have a friend with prostate cancer.

His PSA keeps raising after second "hormonal" theraphy.

I am assuming that few artemisinin pills should not hut him.

http://www.houseofnutrition.com/arar1090.html?ovchn=CJN&ovtac=AFF&ovcrn=ARG's+Artemisinin+100mg+90Caps&ovcpn=Commission+Junction

ARG's Artemisinin 100mg $28.16

If you have any suggestions on use of artemisinin, pls, do not hold up.
-----------

From time to time I am using

Now Foods Fresh Green Black Walnut Wormwood Extract

http://www.amazon.com/Fresh-Green-Walnut-wormwood-complex/dp/B00028MHRO

My Korean friend tells me that it improves digestion and kills some parasites.

Back in Poland people will just drink Absint, 2 birds 1 stone.

Absinthe Absinthium Black
http://www.absinthe.fm/products/Absinthe/Strong/Absinthe-Absinthium-Black.html

////////

....

JanSz

01-23-2010, 11:04 AM

Do you have details?

No, possibly on the next visit I will have opportunity to ask about.

Anybody else reading this have some info??

...............

Hemochromatosis

01-23-2010, 12:22 PM

Thank you very much, Hemochromatosis.

Lots of useful information.

There is no one around who knows more on this subject.
Hopefully you will find a time to chime in when people with high Hct show up asking questions. There is few around here, possibly with less challenging cases than you are facing.

=================
=================
From your complete post I have cut out portion on

artemisinin on cancer
---

I have a friend with prostate cancer.

His PSA keeps raising after second "hormonal" theraphy.

I am assuming that few artemisinin pills should not hut him.

http://www.houseofnutrition.com/arar1090.html?ovchn=CJN&ovtac=AFF&ovcrn=ARG's+Artemisinin+100mg+90Caps&ovcpn=Commission+Junction

ARG's Artemisinin 100mg $28.16

If you have any suggestions on use of artemisinin, pls, do not hold up.
-----------

From time to time I am using

Now Foods Fresh Green Black Walnut Wormwood Extract

http://www.amazon.com/Fresh-Green-Walnut-wormwood-complex/dp/B00028MHRO

My Korean friend tells me that it improves digestion and kills some parasites.

Back in Poland people will just drink Absint, 2 birds 1 stone.

Absinthe Absinthium Black
http://www.absinthe.fm/products/Absinthe/Strong/Absinthe-Absinthium-Black.html

////////

....

Artemisinin is derived from Sweet Wormwood also known as Sweet Annie. The Case Western Reserve clinical should be an easy search ( I think Sanja Gupta was part of that clinical team - to be confirmed) and if I had more time I would do it for you. Artemisinin also comes in an injectible form I think called artemisia (needs confirm). Not all artemisinin is the same. There are many hybrid strains and the potency values vary big time from source to source and even within a most sources by lot/batch. This little unknown big C warrior has the attention of Gates and his foundation who are on a kick to combat malaria in Africa. Artemisinin is the only compound that is better than 98% effective against malaria I think they use to use quinine or something that sounds like it, etc...

Holley Pharma in Brea CA is where I buy mine and I have it on standby. I have not had a need to use it but I keep it handy just in case the FDA gets a hair and tries to regulate it. If I had prostate cancer I would run a bottle of the capsules down to a compounding pharma and have 1 batch made into suppositories to be able to load a concentrated deliverable right on the prostate.

C A U T I O N

If you smoke or use any tobacco substance and I beleive it is niccotine may be other cig compounds as well, INGESTING ARTEMISININ CAN KILL YOU if you take it and smoke.

Also, it will boost the efficacy of chemo that is why it is starting to make it into some open minded hematology/oconology centers.

If taken within 30 days or so of radiation therapy it will have no effect.

-----

your friend also needs to monitor his E1-3 with emphasis as usual on estradiol E2 (sensitive/ultra if available), as there is a correlation between E2 and prostate enlargement........deferring to other who know more on this portion...but needs to be addressed.

the danger here is that you are not providing a complete profile as presenting......i say this with kindness and love.

if your friend has an arrythmia the green machine will coagulate and personally and not because i have to phleb, i think the red cross every 56 day 1 pint for all people is a good program if you do not have predispositions

moreso, i at some point will get off of the enzyme retarding blood thinner called coumadin and will turn to the king of chelation Dr. Gordon of Arizona. Old codger with tons of illumination. A gift to mankind. His web site alone is amazing to dig through his archives....

http://www.gordonresearch.com/

I have a half dozen docs I would love to stick in a room together with Dr. J....they would be an amazing cure team, amazing!

I want to go off coumadin and use the BC-I, Boluke, Nattokinease combo............but, and I have written GOrdon who can get crusty and recoil...I want to monitor my thinning. His response is 25 years and not one stroke or heart attack by patients on it....o ok thats nice!

Sidenote: Did you know that the clinical used to sell all of medicine on coumadin was 14 individuals with only 2 responding to therapy as predicted/expected! I beleive the cclinical is on Doc Gordon website. Moreso did you know WARFARIN the coumadin generic stands for Wisconsin Alumini Research Fund. Thats right every tab of warfarin sold pays a royalty to the University of Wisconsin..................Kaching!

but.......what if I want to stack policosanol a derivative from sugar cane wax that is substantially more effective than statins on both LDL and HDL that has major thinning properties?.....no answer.......so touchy....but

my thoughts are to get my coumadin which can be measures with an inr protime to optimal for me 2.5 and then correlate with viscosity, fibrin and platlete testing. bench mark the latter three and use as a cross over to correlate to the effects of BC-I, Boluke, Natto combo....other than that not sure....

So the stroke aspect as mentioned in this thread is there with an Hct as presenting, but we are all mitigating and dissipating clots all day long, it is just when your left atria sits and quivers at 300cpm that the contraction doesnt clear the left atrial appendage and you then are foobared.

So, Yes, I think giving blood every 56 days (red cross standard for normal peeps) is a good idea for TRT patients or a proactive BC-I, Boluke, Natto would also mitigate and reap huge benefits.....They say, those they that everyone refers to but never knows!......say that Natto can reset all enzematic activity and reaps huge gains.

Plus a phleb for your pal is probably good to also help offset the iron load, depending on his/her age hopefully you can tank the iron until you can get a stable psa.

So if your friend does not have an arrythmia or thinning issue other than the viscosity impacts of T then you may want to look to olive leaf extract, do the reasearch it is worth your time......thumbnail is kills off parasites and bacteria but also has thinning properties........

may want to suggest colonics a series of 6 and a good acidophilous such as enzymatic pearls that can make it past the stomach hcl......

Your Absinthium Black reference <--no comment no knowledge

need a better profile of your friend.....I would suggest some form of high potency green such as barley or wheat grass, cant do not know enough.

a good collodial or angstrom mineral supplement would not hurt either......

clean water.... and target ph at 7.6 +/-...omega.com has great meters and have the tech grade to calibrate will also check mv's microvolts in the urine

best to your friend.......be well

JanSz

01-23-2010, 05:18 PM

While it is still on topic,

Polish way of drinking Absynt.

http://www.youtube.com/watch?v=pU__ShnJC_4

Cheers!!

Na Zdrowie!!

Bottoms Up!!

..

josh

01-27-2010, 07:10 AM

I would be interested at least in E2 home testing.

I would pay $1,000 for a home E2 test.

LeanGuy

01-27-2010, 02:37 PM

home cortisol meter... like a glucose meter

josh

01-28-2010, 12:38 AM

I'd pay $800 for one of those :thumbup1:

(Actually, I think one is available, but very expensive)

JanSz

01-28-2010, 01:07 PM

I'd pay $800 for one of those :thumbup1:

(Actually, I think one is available, but very expensive)

What are you saying?

There is portable meter for E2 and it cost $800.

Please post name and link.

.............

josh

01-28-2010, 08:57 PM

No, I am not aware of an E2 meter.

T'was in reference to the cortisol meter. I remember reading something about it either in an Addison's newsletter or on a forum. It was very expensive.

chilln

01-29-2010, 09:38 PM

Does anyone know if there are any MFG's who have or are planning to produce any at home test equipment for any part of HRT such as T:E2 or anything for that matter. I am at the point of acquiring a GC/MS and taking classes. It amazes me that Baxter or some other MFG hasnt jumped all over this since a low cost in house diagnostic kit would sell like hotcakes.

Any G2?

Eventually the solution will be a lab-on-a-chip (microfluidics / microarray) product.

Google either:
a) "lab on a chip"
or
b) microfluidics
or
c) microarrays

These are all "one-shot". None are reusable because they can't be cleaned / reset.

###

Here's what we can currently obtain, but there's no hormone test chips available yet.

http://www.chem.agilent.com/en-US/products/instruments/lab-on-a-chip/Pages/default.aspx

When you perform a search on their literature library, ie:

http://www.chem.agilent.com/en-US/Search/Library/Pages/default.aspx

...and this literature library includes product manuals, then they have a lot of literature which includes any of the words testosterone, or estradiol, or cortisol, or thyroid.

But when you specifically restrict the Product Group to "Lab-on-a-chip", and then search for the same terms once more, you get no responses.

http://www.chem.agilent.com/en-US/Search/Library/Pages/LibrarySearchResults.aspx?a=Scope%3a%22Library+Con tent%22+ProductGroup%3aLab-on-a-Chip+Language%3a%22English+(U.S.)%22

###

So keep googling these three terms, because eventually we will be able to purchase a lab-on-a-chip which measures testosterone, or estradiol, or cortisol, thyroid hormone T3, or growth hormone.

Then after several more years, we'll be able to afford to buy enough of them to use them to monitor our own levels. But I think we're talking 2025.

.